DVT/PE & Blood Clotting Disorder Support & Information

Pulmonary Embolisms, Deep Vein Thrombosis, and Clotting Disorders - oh my!

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The Smiths
strikingyoudead wrote in thrombi_support
At what level does a clot start to form?

I know when on warfarin your level should be 2.0 or higher.
My levels today are 1.4 and I just started(Wednesday) a progestin only birth control and I'm nervous that its going to cause a clot. Which means I'm super paranoid about ANY pain in my leg.
My levels have been wacky lately anyway. Three weeks ago it was 1.6.

My doctor upped my dose.
Its now 7.5 for two days, then 5MG for 5 days and then 7.5 for another two days.
Should I be this freaked out, or should I calm down a bit?
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I got a iud so I wouldn't have to worry about birth control. That way there are no uneccessary hormones in my system. I got a mirena and the hormones are localized to my uterus.

I saw one of the leading blood clot specalists and I was told that I would never be able to take any form of hormones ever. Why are you taking the coumadin to begin with?

I have factor V. Have had two clots, so I am a life long blood thinner taker.

Well an IUD was going to be my second choice, but some of the risks with it just made me not want to have it.
I did a ton of research with the progestin only pill and it said women who have had blood clots can take it.

I am a lifer on blood thinners also becasue i have a filter. I'm 24 and I have a son and I'm not planning on another one for a few years. The main plus of the iud is that I no longer have a period.
They told me that the progestin pill can/may still cause clots and an iud was my only option. I think the main deal is there is a difference with someone who just got a clot and someone who has a clotting disorder.

Well you don't have a period because of the progestin that is in the IUD. I also have a filter.
My gyno said that there is no proof that progestin pills can cause blood clots, nor proof that they don't. So as long as I knew that, he was okay with it as long as I kept up with my blood work. I know I should probably relax a bit since this is my first week and my doses might have to be adjusted.

FYI: I have Factor V and I am also on the POP. I have never had a clot so I cannot answer your initial questions, but I did want to add that my gyno actually called me back a few weeks after my appointment with her to tell me about my options. She researched it and consulted with a hematologist and said that I could take the POP, IUD or the shot (not sure what the technical term for that was). I ended up chosing the POP because it seemed the best option for me (and least risky overall). :)

That's funny. My doctor brought up IUDs as a form of birth control, but she doesn't want to put me on them. She says that, because I'm taking Coumadin, I'm at a high risk for bleeding.

Well there are two types of IUD's.
One is the mirena which has the progestin which will lessen your bleeding.
And there is a copper one that causes more bleeding.

My levels today are 1.4 and I just started(Wednesday) a progestin only birth control and I'm nervous that its going to cause a clot. Which means I'm super paranoid about ANY pain in my leg.

I had a pulmonary embolism about a month ago, and up until last week, I was incredibly jumpy about any pains that I got in my leg. The, last week, my doctor showed me a way to measure my legs if I have pain in them and I suspect that I might have a DVT. What's great about this technique is that it helps me stay objective about things and I'm less likely to start panicking every time my legs hurt.

This is how it works. You'll need a measuring tape and a pen. With the pen, mark off the top of your knee cap and the bottom of your knee cap while sitting down. Then, while you're still sitting down, take the measuring tape and make a mark 2 inches, 7 inches, and 11 inches above the top of your knee cap. Then, while you're still sitting down, make a mark 2 inches and 5 inches below your knee cap. Stand up. Now you want to measure the circumference of your legs. Wrap the tape around your leg below each of the five marks that you made (2', 7', and 11" above the knee - 2' and 5' below the knee). Write the measurements down. If you continue to have problems, measure your leg(s) again using the method I just described. If you have a DVT, the circumference of your leg will increase. My doctor told me that, if the measurements increase by 1cm, I should call her and then we'll start keeping an eye on it. Another thing, my doctor told me to make sure that I stay consistent so that I get accurate measurements. In other words, I have to make sure that I mark my legs off at the correct places and always measure below the mark (not above sometimes and below at other times). Also...don't compare legs to one another. We're not all symmetrical. The point is to monitor your leg over a period of time.

Anyhow...I hope this advice helps. If you have any other questions, please let me know...

Edited at 2008-02-12 07:56 pm (UTC)

Wait so you're on thinners, had a clot and are allowed on Birth Control?

progestin only birth control. Its the estergon that causes your blood to thicken. I've been doing well so far and its been 5 months. I bleed a bit more on my period, but other then that no problems.

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